The Scoliosis Experience
Lisa on the Importance of Scoliosis Specific Exercise with Adult Scoliosis

Lisa on the Importance of Scoliosis Specific Exercise with Adult Scoliosis

June 13, 2021

In this episode, we talk to Lisa who is an amazing example of being active and strong even with being braced and having multiple surgeries and back pain. 

Lisa was diagnosed with scoliosis as a teenager, like most of those with scoliosis, and her curve progressed to where she has needed a brace, then surgical fusion, and then a fusion later in life because of some nerve issues.  

She has learned to stay strong and listen to her body and shares how she has found success with scoliosis specific exercise using the Schroth Method.  

Advocate for your child with Kristen Whipple

Advocate for your child with Kristen Whipple

May 16, 2021

In this episode, Kristen shares an amazing story of her daughter's journey with scoliosis.  Here are a few highlights of her story:

  • What she did at diagnosis to advocate for her daughter.
  • How she was able to stay consistent with bracing and scoliosis specific exercise. 
  • How bracing went and challenges. 
  • How they dealt with progression to surgery when they thought she was out of the woods. 
  • How they handled complications after surgery.
  • Lessons learned during this journey. 

This would be a great episode for anyone who has a child diagnosed with scoliosis, or looking at being braced, or even looking at surgery.  

One of the main messages that Kristen brings is to consistently advocate for your child.  If you have a question or concern, SPEAK UP!  

Move Your Body! Advice from Eva Butterly, The Scoliosis Warrior

Move Your Body! Advice from Eva Butterly, The Scoliosis Warrior

January 31, 2021

In this episode, I talk to Eva Butterly from Dublin.  When I first started this podcast, I noticed there weren't many other scoliosis podcasts, but one kept popping up when I would search.  Eva started The Scoliosis Warrior Podcast to share what she has learned from her experience with scoliosis. 

Eva was diagnosed with a fast progressing scoliosis curve as a young teenager. After 6 months of mismanagement, she had progressed to the point of needling surgery with a curve OVER 90 DEGREES! 

She underwent surgery to stop the progression of the curve, and then 6 months later needed to have the rods removed because of an infection.  She then spent quite a bit of time in a hard cast to make sure her spine was stable.  

Despite these trials, Eva is a great example of working hard to achieve your goals. She is a weight lifter, fitness instructor, and recently has taken up ultra marathon running. 

She talks about her experience with scoliosis specific exercise, staying healthy and strong, and IT band and back pain. 

One of the main takeaways from this episode is to "Move Your Body!".  She is a great advocate of movement and being active.  Whether you have scoliosis or not, that is great advice.  If you have scoliosis, it is even more important.  

You can connect with Eva at:

Instagram:  @evabutterly

Facebook: @evabutterlyfitness

You can also learn more about conservative management before, and even after, scoliosis surgery at https://www.aligntherapyutah.com/scoliosis-portal/

 

Brace Mentors and Scolios-us website with Megan Glahn

Brace Mentors and Scolios-us website with Megan Glahn

January 18, 2021

One of the hardest things for those diagnosed with scoliosis is being in a rigid scoliosis brace.  Most of the time, they feel alone, like they are the only one with scoliosis.  

In this episode, Megan Glahn, who is a certified orthotist shares with us a way these kids can get connected with a mentor/friend who also has experience with bracing.  Being connected with someone who knows what you are going through is very powerful.  

Her website is https://www.bracingforscoliosus.org/ and you can go on there to register your child to be set up with a mentor.  

Not only is the website a good place to go to find a mentor, but it is also an amazing resource for scoliosis.  You can find things on there about pretty much anything.  There are also some great support groups represented there. 

If you are a provider of scoliosis treatment, she even has a good resource for you to support your patients in their fight against scoliosis. 

Megan's email is

bracingforscoliosus@gmail.com

Alayne Wadsworth on Dancing With the Stars, Scoliosis Surgery, and becoming a World Champion

Alayne Wadsworth on Dancing With the Stars, Scoliosis Surgery, and becoming a World Champion

January 16, 2021

Many of those living with scoliosis wonder what they are still able to do.  Alayne Wadsworth is a great example of reaching for the stars, even though you have the diagnosis of scoliosis. 

She was diagnosed as a teenager and wore a scoliosis brace for 5 years! After coming out of the brace, she continued to dance and used this as a way to escape from the diagnosis of scoliosis.  

During that time, she was on Dancing With The Stars.  Through this time, she had back pain due to her scoliosis and noticed her curve was getting worse.  She was then told by a surgeon that if she did not have surgery to "fix" the scoliosis, she would end up puncturing her lung.  

She had scoliosis fusion surgery and was told she would be done with her dance career.  Amazingly, she was able to return from surgery and began dancing 7 months later.  She eventually became a World Champion in ballroom. 

Alayne is currently a model, actor, and still dances!  She is a great example of someone not willing to give up on their dreams and a fighter with scoliosis. 

This would be a great episode for those looking at being braced, having surgery, or wanting to still achieve their goals, despite having scoliosis.  

If you want to contact Alayne, you can go to her website at 

https://alaynewadsworth.com/

email her at:

alaynewadsworth@gmail.com

or follow her on Instagram:

https://www.instagram.com/lannie_lane/  where you can read about her story and see a great video of her.  

Orthotist Perspective on Bracing and Scoliosis with Jared Larson

Orthotist Perspective on Bracing and Scoliosis with Jared Larson

January 1, 2021

Bracing is a very large component of many people's journey and experience with scoliosis.  Because of this, the orthotist is a key member of the team in treating scoliosis.  Jared Larson is an orthotist in Salt Lake City at Hanger Clinic.  He does more scoliosis braces than almost any other orthotist in Utah. 

In this episode he discusses the process of bracing and what patients go through as they are getting braced.  He also talks about the different kinds of scoliosis braces and goes in depth on how they work.  He also talks about specific things to do to get the best results from bracing.  

Higgy Bears for Scoliosis and Owner, Lauren’s, Story

Higgy Bears for Scoliosis and Owner, Lauren’s, Story

December 20, 2020

Lauren is the owner and founder of Higgy Bears.  This amazing brand and company was born out of an amazing scoliosis experience.  In this episode, Lauren shares her story of scoliosis and what led her to start Higgy Bears.  

Higgy Bears is a company whose goal is to help kids who are braced, mostly with scoliosis, feel like they are not alone.  The bears have braces custom made to match the brace the child wears and is a huge comfort during this trying time of life.  The pattern and style of the brace is matched exactly and they can even be made with rods for after surgery. 

Lauren shares her experience of having multiple scoliosis surgeries, how she dealt with chronic pain, and what finally helped her to get better, both physically and emotionally.  

She is an amazing example of staying strong during the challenge of a scoliosis diagnosis and treatment, and helping others to feel like they are not alone.  

If you are looking for a Higgy Bear, or just want to learn more, you can email Lauren at lauren@higgybears.com.  You can also visit her website at https://higgybears.com/ for more information and to place an order.  

 

Yoga Therapy for Scoliosis with Kristen Davis

Yoga Therapy for Scoliosis with Kristen Davis

November 14, 2020

This is an awesome episode talking to Kristen Davis about Yoga Therapy, specifically for scoliosis.  For those who don't know what Yoga Therapy is, it is a way to use Yoga to do individualized treatment for scoliosis while improving the mind body connection.  She explains more about this and also about her own journey with it.  To contact Kristen, you can email her at bomiwellness@gmail.com to find out more information about it.  

Living with Adult Scoliosis with Kristen Davis

Living with Adult Scoliosis with Kristen Davis

November 9, 2020

In this episode, we talk to one of our amazing adult scoliosis patients, Kristen Davis.  She is a great example of taking control of your health and your scoliosis while exploring different treatment options.  She discusses her experience as an adolescent as well as an adult and helps to shed some light on how to manage scoliosis throughout life.  She is also a Yoga Therapy instructor working specifically with scoliosis and patients with trauma.  Great episode for anyone! 

Scoliosis Surgeon Dr John Smith on VBT, Scoliosis Surgery, Recovery, and Treatment

Scoliosis Surgeon Dr John Smith on VBT, Scoliosis Surgery, Recovery, and Treatment

October 26, 2020

In this episode, Dr John Smith shares his background with scoliosis, what made him interested in treating the spine, and what surgery is like.  He is an amazing surgeon and is well-known in the US.  He specifically explains who is appropriate for Vertebral Body Tethering, and what that surgery is like.  He also gives some great insight into spinal fusion for scoliosis correction.  Great episode for those just diagnosed, approaching surgery, or those considering VBT. 

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