The Scoliosis Experience
A PT Student‘s Scoliosis Experience: with Skylar Fenton

A PT Student‘s Scoliosis Experience: with Skylar Fenton

October 12, 2021

In this episode, Skylar shares her story and experience on scoliosis surgery during college. She also describes what it is like living with spinal fusion. 

Being a PT student at Rocky Mountain University in Provo, UT, she has learned about the body and spine and requested an internship at my clinic.  She wanted to learn more about scoliosis treatment. 

She shares some great insight into the education PT's receive about scoliosis and specifically treatment, as well as her experience with PT after surgery.  

Skylar is a great example of working hard and not letting a large scoliosis curve, or fusion, get you down.  She is still a runner and athlete and has learned how to address her scoliosis as well. 

This is a great episode for anyone who is diagnosed with scoliosis or who has had surgery and is wondering what their outlook will be.  

One of the main things she talks about that helped her was to get in touch with others who also have scoliosis or who have been through surgery.  Hopefully this episode helps those going through similar things. 

Stay Positive and Ask Questions: Chiari and Scoliosis with Izzy

Stay Positive and Ask Questions: Chiari and Scoliosis with Izzy

October 12, 2021

Most scoliosis is termed "Idiopathic" which means "of unknown cause".  Sometimes though, scoliosis is caused by other things that we do know.  In this episode, I talk to Izzy and her mother, Julie, about scoliosis that came on after a neurological cause.  

Izzy was diagnosed with a Chiari Malformation which caused her scoliosis.  Her experience and journey through brain surgery and then scoliosis treatment is inspiring.   

Even with brain surgery and faithfully bracing, Izzy is now looking at having VBT surgery to reduce the size of her curve as she continues to grow.  In this episode you can hear how she has stayed motivated and optimistic. 

Her advice is to stay positive and ask questions.  Listen to the rest of her story to learn more about what you can do to help your own curve.  

Don‘t Limit Yourself with Garrett Batty

Don‘t Limit Yourself with Garrett Batty

September 16, 2021

In this episode, I talk to Garrett Batty who is a Film Producer/Director.  He has an amazing story of perseverance through challenges related to scoliosis.  

Garrett was born with a condition called Tetralogy of Fallot resulting in multiple surgeries.  He was also born with scoliosis which progressed to where he needed scoliosis correction surgery as a teen.  

During this surgery, he was paralyzed because of a spinal cord injury.  This is a very rare complication of scoliosis surgery.  Even though his doctors told him he would be in a wheelchair for the rest of his life, he decided to push through and eventually walked out of the hospital 40 days later.  

Since that surgery he has still had some issues with weakness and limping and recently was seen in my office for treatment involving the Schroth Method for scoliosis.  He has seen some awesome results from this and has worked hard to improve his back. 

This is a great episode for anyone who has challenges that they feel "limit" them.  He shows a great determination to overcome obstacles.  His advice to all who listen to this episode is to not limit yourself.  You care capable of so much more than you think.  

Fighting Scheuermann’s Kyphosis with Back Flips

Fighting Scheuermann’s Kyphosis with Back Flips

August 11, 2021

Scheuermann's Kyphosis is a deformity of the spine where the vertebrae develop a wedge shape which causes more of a forward curve of the back.  It can cause pain because the muscles are overloaded in the forward posture. 

Heather is a great example of living life even with back pain and spinal deformity.  She has seen great results with the Schroth Method for posture correction as well as manual therapy.  She mentions being treated with Dry Needling, which has been very helpful in controlling and reducing her pain. 

This episode would be great for anyone with Scheuermann's Kyphosis, or even with any back pain or problem.  Heather is a great example of not letting pain control your life. 

Strat Attacks Scoliosis and Bracing with His Mom Heather

Strat Attacks Scoliosis and Bracing with His Mom Heather

August 10, 2021

Ever since Strat was diagnosed with scoliosis, he has been fighting against it.  He has a great story of staying motivated and consistent in doing what he needs to do.  His mother, Heather, is a great example of a parent who supports her child in this challenging diagnosis.  

One thing you will hear about in this episode is what Heather has done to help motivate Strat to do his exercises and wear his brace.  She even went as far as to do his exercises with him.  If you are a parent with a child who has scoliosis, she gives some great ideas.  

Strat was diagnosed at age 10, which left him a lot of time to grow.  He also has significant height in his family, both of which make it more likely that he will progress.  Despite this, he has a great attitude and stays motivated to attack scoliosis.  

You can follow his journey on Instagram under stratattacksscoliosis.  

Lisa on the Importance of Scoliosis Specific Exercise with Adult Scoliosis

Lisa on the Importance of Scoliosis Specific Exercise with Adult Scoliosis

June 13, 2021

In this episode, we talk to Lisa who is an amazing example of being active and strong even with being braced and having multiple surgeries and back pain. 

Lisa was diagnosed with scoliosis as a teenager, like most of those with scoliosis, and her curve progressed to where she has needed a brace, then surgical fusion, and then a fusion later in life because of some nerve issues.  

She has learned to stay strong and listen to her body and shares how she has found success with scoliosis specific exercise using the Schroth Method.  

Advocate for your child with Kristen Whipple

Advocate for your child with Kristen Whipple

May 16, 2021

In this episode, Kristen shares an amazing story of her daughter's journey with scoliosis.  Here are a few highlights of her story:

  • What she did at diagnosis to advocate for her daughter.
  • How she was able to stay consistent with bracing and scoliosis specific exercise. 
  • How bracing went and challenges. 
  • How they dealt with progression to surgery when they thought she was out of the woods. 
  • How they handled complications after surgery.
  • Lessons learned during this journey. 

This would be a great episode for anyone who has a child diagnosed with scoliosis, or looking at being braced, or even looking at surgery.  

One of the main messages that Kristen brings is to consistently advocate for your child.  If you have a question or concern, SPEAK UP!  

Move Your Body! Advice from Eva Butterly, The Scoliosis Warrior

Move Your Body! Advice from Eva Butterly, The Scoliosis Warrior

January 31, 2021

In this episode, I talk to Eva Butterly from Dublin.  When I first started this podcast, I noticed there weren't many other scoliosis podcasts, but one kept popping up when I would search.  Eva started The Scoliosis Warrior Podcast to share what she has learned from her experience with scoliosis. 

Eva was diagnosed with a fast progressing scoliosis curve as a young teenager. After 6 months of mismanagement, she had progressed to the point of needling surgery with a curve OVER 90 DEGREES! 

She underwent surgery to stop the progression of the curve, and then 6 months later needed to have the rods removed because of an infection.  She then spent quite a bit of time in a hard cast to make sure her spine was stable.  

Despite these trials, Eva is a great example of working hard to achieve your goals. She is a weight lifter, fitness instructor, and recently has taken up ultra marathon running. 

She talks about her experience with scoliosis specific exercise, staying healthy and strong, and IT band and back pain. 

One of the main takeaways from this episode is to "Move Your Body!".  She is a great advocate of movement and being active.  Whether you have scoliosis or not, that is great advice.  If you have scoliosis, it is even more important.  

You can connect with Eva at:

Instagram:  @evabutterly

Facebook: @evabutterlyfitness

You can also learn more about conservative management before, and even after, scoliosis surgery at https://www.aligntherapyutah.com/scoliosis-portal/

 

Brace Mentors and Scolios-us website with Megan Glahn

Brace Mentors and Scolios-us website with Megan Glahn

January 18, 2021

One of the hardest things for those diagnosed with scoliosis is being in a rigid scoliosis brace.  Most of the time, they feel alone, like they are the only one with scoliosis.  

In this episode, Megan Glahn, who is a certified orthotist shares with us a way these kids can get connected with a mentor/friend who also has experience with bracing.  Being connected with someone who knows what you are going through is very powerful.  

Her website is https://www.bracingforscoliosus.org/ and you can go on there to register your child to be set up with a mentor.  

Not only is the website a good place to go to find a mentor, but it is also an amazing resource for scoliosis.  You can find things on there about pretty much anything.  There are also some great support groups represented there. 

If you are a provider of scoliosis treatment, she even has a good resource for you to support your patients in their fight against scoliosis. 

Megan's email is

bracingforscoliosus@gmail.com

Alayne Wadsworth on Dancing With the Stars, Scoliosis Surgery, and becoming a World Champion

Alayne Wadsworth on Dancing With the Stars, Scoliosis Surgery, and becoming a World Champion

January 16, 2021

Many of those living with scoliosis wonder what they are still able to do.  Alayne Wadsworth is a great example of reaching for the stars, even though you have the diagnosis of scoliosis. 

She was diagnosed as a teenager and wore a scoliosis brace for 5 years! After coming out of the brace, she continued to dance and used this as a way to escape from the diagnosis of scoliosis.  

During that time, she was on Dancing With The Stars.  Through this time, she had back pain due to her scoliosis and noticed her curve was getting worse.  She was then told by a surgeon that if she did not have surgery to "fix" the scoliosis, she would end up puncturing her lung.  

She had scoliosis fusion surgery and was told she would be done with her dance career.  Amazingly, she was able to return from surgery and began dancing 7 months later.  She eventually became a World Champion in ballroom. 

Alayne is currently a model, actor, and still dances!  She is a great example of someone not willing to give up on their dreams and a fighter with scoliosis. 

This would be a great episode for those looking at being braced, having surgery, or wanting to still achieve their goals, despite having scoliosis.  

If you want to contact Alayne, you can go to her website at 

https://alaynewadsworth.com/

email her at:

alaynewadsworth@gmail.com

or follow her on Instagram:

https://www.instagram.com/lannie_lane/  where you can read about her story and see a great video of her.  

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